Saturday, December 24, 2011

Happy Holidays!



Happy Holidays from Sisters by Heart!

Aly
Bodie and Sierra
Addie Sue
Emmy and Zoe
Gabby and Kaileigh
Jacob and Aidan
Lillian

Owen, Townsend, Max, Paige, Evelyn
Madden and Cole


Thank you for allowing us into your lives to share your journeys this year. We are truly blessed and honored.

Here's looking at a New Year filled with HOPE and LOVE.




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Friday, December 16, 2011

It All Started with 3.

130.
130 mothers feeling, for the first time,
a little less alone on the start of a very scary journey.
130 fathers given the gift of HOPE.
130 families changed forever.

In the past twelve months, Sisters by Heart sent 130 care packages to families facing the life-long journey with Hypoplastic Left Heart Syndrome.  We’re so proud. And we’re so excited, about where we’ve been, where we’re at, and where we’re headed.

But truthfully, it all started with 3. Just 3. 3 scared moms facing a new HLHS diagnosis. 3 families embarking on a life-changing journey. 3 moms that we wanted to help in some small way. On December 16, 2010, we mailed our very first Sisters by Heart care package. 3 care packages went out that day. They weren’t fancy. They didn’t include a lot of the “frills” that our packages include now. But they did include the essentials, and the most important thing we offer – HOPE.

We look at the last 365 days and know what they represent for us: a whole lot of love, sweat and tears poured into a dream that has taken flight in ways we could not have ever imagined. But, in honor of our very first anniversary, we wanted you to hear from the families we've touched. We asked those first 3 families if they wouldn’t mind sharing with us a little of what Sisters by Heart has meant to them. We hope their stories touch you as much as they have touched us.

 
Parker
Dec. 19th 2010- Dec. 30th 2010 
 “A year ago after the delivery of my son, I received a package from Sisters by Heart. It was the week of Christmas, my son was very sick and honestly I was having a pretty rough time. Getting the package in the mail lifted my spirits. There was a lot more in that package than just material things. There was also hope, love, understanding, support and most of all friendship. Thank you for everything you ladies do!” 
Heather, mommy to Parker 
Austin
almost 1 (and 8 months post Glenn)
Happy Anniversary Sisters by Heart! How could I ever forget? It is very emotional to think about what was happening at this time last year. I was terrified about the upcoming birth of my son Austin (HLHS) and pretty unsure of what was to come. I remember opening the package with tears in my eyes reading the notes about you all and on every single item as I remembered hearing heart mom's talk about these things -- side snap onesies, pacis for after extubation, a journal and pen to take notes and other surprises! To know that there were moms out there who made it through this part and wanted to share this with me was so touching. The Sisters by Heart care package was the first thing that I packed in my hospital bag and I used EVERY item! I told our nurses about how such a sweet group of heart moms got together and sent me those things and how you all also taught a lot about what to expect to this new CHD mom. Congratulations on all that you have accomplished in touching the heartsof so many during this past year! You are amazing!”
Amanda, mommy to Austin

Olivia
Dec. 23rd 2010- Apr 24th 2011
The first time I ever saw anything from SBH was a few days after Olivia’s heart surgery. I remember walking into our room and seeing a package on the chair and the nurse smiled at me and said it was for us. Chris and I opened the package right there to see what was inside. The package had onesies that Olivia was soon able to wear, a note book and pen (which became a close friend of mine) and a few other little things that we never knew we needed. We were so happy to get something from moms who knew just what we needed. Chris and I hugged and showed our sweet girl her gifts. We have received so much love and support from so many but the care package really stands out with us. It was the first thing we received on our journey and SBH has been there every step of the way. Our Olivia has since passed away and now is off playing in heaven but Sisters by Heart still continues to shower our family with love and hope for the future! Thank you ladies for all that you do and I truly believe in Earth Angels now. Happy Anniversary and best wishes for many more to come!”
Katie, mommy to Olivia, and the Davis Family

We want to extend our heartfelt thanks to these 3 families for sharing with us, and to every single one of the 130 families who have allowed us to touch them in some way this past year. Happy anniversary to each and every one of our special heart families!

Please consider making a donation today, in honor of these three families, and the 127 families that followed in their brave footsteps. Without the ongoing support of our generous donors, we cannot continue to serve these families. Please click here (or simply click on the "Donate" button to the right of this entry) to make a donation!


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Monday, December 12, 2011

One Born Every Minute


Set your DVRs - you won't want to miss "One Born Every Minute" which will air this Tuesday at 10pm. This week's episode will follow Amber Woods and her family as they talk about their journey with their daughter, Madelyn. Madelyn was born on May 8th (Mother's Day) with Hypoplastic Left Heart Syndrome. She had the Hybrid Stage 1 on May 13th and the Hybrid Stage 2 on October 18th. Madelyn had several complications after her Stage II which led to a cardiac catheterization. Shortly after, the trauma caught up to her and she suffered a stroke. Thankfully, Madelyn has come a long way and is moving her left side wonderfully.

We talked with Amber about her personal decision to let Lifetime follow her journey and this is what she said.
"When our daughter, Madelyn, was diagnosed with Hypoplastic Left Heart Syndrome we had no idea what it was or what to expect. We were handed a white envelope by a Nurse and when we opened it, there was information for the application process of "One Born Every Minute". Many would say the birthing process is so personal, why would people share it with the world? We would have to agree; however, we were handed a gift. We could share our experience to help other families who have gotten the same news or who may one day get the news. We feel it would've been beneficial to be able to see the process of birth to surgery. We want to spread awareness so that people know it's real, it`s scary, it`s life changing but, it`s a blessing in disguise."
Tune in tomorrow at 10 p.m. to watch Lifetime follow the Woods Family through Madelyn's birth and first week of life. Congratulations Woods Family! The heart community is so proud of you for spreading awareness and sharing your story.

To learn more about Lifetime's "One Born Every Minute" or to watch full episodes, including Madeline's (after it airs), click here

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Sunday, December 4, 2011

Gifts with Heart: Heart Heroes Capes

Heart Heroes is an organization created to honor our heart heroes and to help them feel special and brave.  They provide super hero capes to children with Congenial Heart Defects. Heart Heroes started with a simple idea and three creative heart moms. 

Here's their story and how Heart Heroes came to be:


"These children laugh, play and enjoy life just like any child, however, what makes them our heroes is that they have experienced life-saving heart operations - unlike most children. One would never know these children have endured lengthy hospital stays and miraculous medical interventions.

Undergoing these complex medical procedures is a daunting experience even for adults. For children, being alone without their family to comfort them amidst a crowd of medical professionals is absolutely frightening. Heart Hero Capes was created with the hope that all children visiting the hospital or their cardiologist will feel invincible wearing their cape - have super powers - and that their parents will be comforted knowing that the arms that always protect them are momentarily being substituted with the superpowers of the cape.

After seeing their children face the challenges of heart operations and cardiology appointments, the moms of these heart heroes decided to create the opportunity for all children with Congenital Heart Disease (CHD) to have a Heart Hero Cape."


REQUEST A CAPE FOR YOUR HEART HERO
To request a cape for your heart hero, CLICK HERE to be redirected to their order page. Please note there is currently a wait list. If you wish to get your cape sooner you may purchase a cape here.

PURCHASE A CAPE FOR SIBLINGS
Want to purchase a cape for Siblings? All purchases through their official Powercapes Affiliate link helps them earn money to purchase additional capes! 

Custom Capes are available for PURCHASE here

DONATE A HEART HERO CAPE

Your donation will be sent as a gift card to a Heart Hero in need, which will allow them to design their own cape. Click here to DONATE a cape. 

Click here to visit Heart Heroes on Facebook.
Be sure to show off pictures of your Heart Hero on their page!


A few of our Heart Heroes ...
Aly Jean

Jacob Dylan

Zoe Madison

Gabby Charlize

 
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