Sisters by heart is a group of heart moms who came together during their CHD journey – some of whom were fortunate to meet prior to their CHD warriors arrival. We’ve supported each other in our journeys with our congenital heart defect children. Knowing the challenges and difficulties we faced upon diagnosis, and more so, upon bringing our HLHS fighters into this world, we created Sisters by Heart to reach out and support parents of the newly diagnosed. A major aspect of our mission is to send care packages to new mothers (and fathers) who are at the beginning of their journey. We want them to know that they are not alone and provide resources and understanding while their child undergoes care and treatment from birth throughout recovery.
Sisters by Heart is intended to be a support group only. We do not have any medical expertise. We are here to give our personal experiences and offer our support for newly diagnosed parents going through this HLHS journey. Any advice or suggestions we may give do not take the place of medical advice. You are strongly encouraged to speak with a medical professional regarding your child's specific condition.