Hello Sisters by Heart Family! SBH is invited to participate in a hugely impactful project with Empowered By Kids (www.empoweredbykids.com).
Sisters by Heart was founded from a deep desire to spread Hope to newly diagnosed families. How would you have reacted to a "Book of Hope" containing stories of children and families living with an HLHS diagnosis at the time of your diagnosis? Sisters by Heart feels strongly that sharing your hope and inspiration with families who are walking our journey can be a soul-shifting event for the newly diagnosed. The "Book of Hope" will be provided in Sisters by Heart care packages and given to care centers across the country at no cost for distribution to newly diagnosed families.
We'd love to capture a few dozen incredible stories to include in the HLHS "Book of Hope." To participate, please prepare a write up (250 word maximum) outlining your journey with HLHS. Your story should reflect words of inspiration that you needed at diagnosis - reflecting that it is indeed not fair, but you will get through this and there are brighter days ahead. You can also supply a photo or artwork for the book.
No demographic data will be revealed in the Book of Hope. Your story will include you/your child's first name or patient name (for teen/adults). Patient ages will be included.
Empowered by Kids has worked with two other pediatric rare disease communities to create their Books of Hope, which can be viewed here:
Crohns Book of Hope
Cystic Fibrosis Book of Hope
If you'd like to inspire and create hope for others with your HLHS journey, please submit your write up, photo and/or artwork no later than January 31, 2015 to firstname.lastname@example.org. Please note "Book of Hope Submittal" in the email subject line. If we receive an overwhelming amount of submissions, Empowered by Kids and Sisters by Heart will select the entries utilized in the first edition of HLHS' Book of Hope.
We look forward to reading your stories. Thank you for helping us touch as many families as possible.
Another couple of first for the books..
2 months ago